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Association Française Contre L’Amylose (AFCA)

Association Française contre l’Amylose (AFCA)

66 rue Saint Jacques
Marseille, France
Email   Phone   Web  

Anciennement Association Paulette Ghiron Bistagne contre l’amylose, aujourd’hui l’Association caritative française contre l’amylose est régie par la loi de 1901.

Les buts déclarés de l’Association sont :
• Favoriser la recherche médicale pour lutter contre l’Amylose,
• Améliorer la connaissance de cette maladie auprès des publics concernés (médecins, malades, organismes divers).
• Développer les synergies avec des associations existantes traitant des maladies génétiques.
• Contribuer au « confort des malades » en « brisant » leur solitude face à la maladie (communication entre malades, informations sur l’avancement de la recherche).
 

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